WARRIOR SUPPORT AND EMAIL CONTACTS
MOEBIUS1.ORG
MOEBIUS 'WARRIORS' INTERNATIONAL |
(RETURN TO INDEX
PAGE)
EMAIL |
This is a list of those with experience in dealing with Moebius Syndrome
at home. They are willing to share experiences with anyone that desires
information,
understanding or someone with whom to 'talk'.
These people are not medical or psychological professionals.
They are regular people dealing with Moebius Syndrome
on a daily basis.
The purpose of this format is to provide connection and share experiences
with others in a situation you may find yourself in at this time, past or
future. Shared experiences can offer emotional validation and ease
confusion, fear or guilt.
So,....don't be shy......talk about it!
[CATEGORY & AGE GROUP INDEX]
(Click the appropriate group below) |
ADULTS with MOEBIUS SYNDROME
[20's]
[30's] [40's]
[50's] [60's]
[Other] |
PARENTS of MOEBIUS CHILDREN
[2000] [1999]
[1998] [1997] [1996]
[1995] [1994] [1993]
[1992] [1991] [1990]
[1989] [1988] [1987]
[1986] [1985]
[1984]
[1983] [1982]
[1981] [1980] |
GRAND PARENTS
[Click] |
SIBLING & OTHER RELATIVES
[Click] |
TEENS
[Click] |
If you are willing to add your email address to this list please contact
webmaster@moebius1.org
MOEBIUS 'WARRIOR' MEMBERSHIP
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ADULTS with MOEBIUS
SYNDROME |
[20]
BACK
Lisa_k_e@yahoo.com
Lisa (F-24-Moebius Syndrome)
babyracer_8@yahoo.com
Alicia (F-20-Moebius Syndrome)
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[30]
BACK
TeriG@prodigy.net
Teri (F-34 -Moebius Syndrome)
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[40]
BACK
djaparks@netzero.net
Darlene (F-40 w/Moebius)
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[50]
BACK
sandygo4it@earthlink.net
Sandy (F-Teacher w/Moebius)
IFSP/IEP ('special ed' issues)
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[60]
BACK
mktxsis@hotmail.com
Arlene Smith
Age - 65
dandmmoffitt@aol.com
David Moffitt
Age - 62
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[Other]
BACK
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PARENTS of MOEBIUS CHILDREN |
[1999]
BACK
Harmony37A@aol.com
Mom(Cindy),Paul(M)
Hol7398@aol.com
Mom(Holly),Samantha(F)
Botzwanna@aol.com
Mom(Donna),Tessa(F)
mmmwood@earthlink.net
Mom(Monica),Madison(F)
mlake@jayco.net
Mom(Kerri),Kierra(F)
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[1998]
BACK
vic2512@aol.com
Mom(Vicky),Colt(M)
ngwood@virtual.net.au
Dad(Nick),Jonathan(M)
Baking1@aol.com
Mom(Suzanne),Isabel(F)
KLW8301@aol.com
Mom(Karyn),Jake(M)
Denise.Bartlett@cvihr.bc.ca
Mom(Denise),Tyler(M)
graciesu@yahoo.com
Mom (Jennifer),Grace (F)
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[1997]
BACK
rmarcelo@sion.com
milenatm@radar.com.ar
marcesinnick@radar.com.ar
Mom(Marcela),Milena(F)
codyt@yadtel.net
Mom(Jan),Dakota(M)
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[1996]
BACK
zjimwalker@email.msn.com
Mom(Martha),Michael(M)
mmdaka@hotmail.com
Mom(Melissa),Kaylee(F)
ford1@jnlk.com
Dad(Steve),Abagail(F)
skohnen@worldnet.att.net
Dad(Scott),Matthew(M)
khindman@midsouth.rr.com
Mom & Dad(Kathy & Jeff),Matthew(M)
May 18, 1996 - December 30, 2001
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[1995]
BACK
tomadam@flash.net
Mom(Phyllis),Lily(F)
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[1994]
BACK
mportaro@bcp.com.pe
Mom(Milena),Erik(M)
angieramey@webtv.net
Mom(Angie),Son(M)
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[1993]
BACK
maditas@yahoo.com
Mom(Maidi),Paolo(M)
kenkel@megsinet.net
Mom(Sandra),Elizabeth(F)
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[1992]
BACK
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[1991]
BACK
vmccarrell@mid-mo.net
Mom(Vicki),Sean(M)
RCruzX@aol.com
Dad(Roger),Christa(F)
jorginick@aol.com
Unknown (M)
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[1990]
BACK
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[1989]
BACK
lorit@netport.com
Mom(Lori),Chelsey(F-11)
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[1988]
BACK
Heyitsonlytara@aol.com
Mom(Tara),Chris(M-12)
(aka/'Agent Trower')
Ksosburn@aol.com
Mom(Kim),Ben(M)
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[1987]
BACK
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[1986]
BACK
DKomlofske@aol.com
Mom(Donna),Matthew
cmost26@mailexcel.com
Mom(Clarinda),Christopher (M)
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[1985]
BACK
MaxieCo13@aol.com
Mom(Beckey),Daughter(F)
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[1984]
BACK
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[1983]
BACK
moebiusca@aol.com
Mom(Marcia),Natalie(F)
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[1982]
BACK
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[1981]
BACK
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[1980]
BACK
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[2000]
BACK
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GRAND PARENTS
BACK |
webmaster@moebius1.org
Grandpa,(F-newborn)
Henklink@aol.com
Grandma, Natalie (F-2001)
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BJLO@aol.com
Grammy,Jake(M-2)
MGraf14245@aol.com
Grandmother,(M-19mo)
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SIBLING & OTHER
RELATIVES
BACK |
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TEENS
BACK |
NEW CATEGORY
TEEN SEEN
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NEW CATEGORY
TEEN SEEN
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