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FAMILY ALBUMS QUESTIONNAIRE

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1.) WHY DID THIS HAPPEN TO ME......DID I DO SOMETHING WRONG?
(MEDICAL & SPIRITUAL ASPECTS)

2.) HOW MANY SYMPTOMS DOES YOUR CHILD HAVE & HOW SEVERE?

3.) HOW LONG WAS YOUR CHILD IN THE HOSPITAL AFTER BIRTH?

4.) DID YOUR CHILD HAVE ANY SURGERIES RELATED TO MOEBIUS SYNDROME & WHAT WERE THE RESULTS?

5.) HOW DOES A G-TUBE WORK......ARE THERE ANY PROBLEMS.....WILL MY CHILD EVER EAT REGULAR FOOD AND SWALLOW?

6.) DOES YOUR CHILD NEED SPEECH OR PHYSICAL THERAPY.....IF SO, WHAT WERE THE RESULTS?

7.) DOES YOUR CHILD EVER SMILE?

8.) CAN YOU TELL ME SOMETHING ABOUT INSURANCE & FINANCIAL ASPECTS OF MOEBIUS SYNDROME?

9.) WHERE CAN I FIND OTHER PEOPLE TO TALK WITH ABOUT MOEBIUS SYNDROME?
(DOCTORS - PARENTS - KIDS & ADULTS WITH MOEBIUS SYNDROME)

10.) IN GENERAL,....DESCRIBE THE IMPACT OF MOEBIUS SYNDROME ON YOUR FAMILY....WHAT ARE WE UP AGAINST?