INTRODUCTION
OVERVIEWS
COMMENTS BY PARENTS & 'OWNERS'
CHAPTER 1
MY BABY HAS
WHAT?!?!?
CHAPTER 2
INFANT FEEDING
CHAPTER 3
SOLID FOODS ?
CHAPTER 4
KIDS ARE KIDS.....EVEN WITH MOEBIUS SYNDROME
CHAPTER 5
EYES
CHAPTER 6
SMILES
CHAPTER 7
MUSCLE TONE
CHAPTER 8
SPEECH
CHAPTER 9
THE CHILD'S SELF AWARENESS BEGINS
CHAPTER 10
SO THAT'S WHAT IT IS (LATER DIAGNOSIS)
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With your help,......and that includes everyone who is willing, moebius1.org
will make the effort to document the experiences of life with Moebius
Syndrome.
As indicated, to the point of redundancy, on this site.....the purpose of
the documentation is to provide a reference for those new to Moebius
Syndrome that need support and to validate the feelings and experiences of
all those currently accepting the challenge of Moebius Syndrome on a daily
basis.
The Guide & Manual will be developed online and will be available to
any viewer of the Moebius1.org web site.
Email your experiences, thoughts and/or feelings to Moebius1.org so that
we may compile, edit and format the material for publication on the site.
Contribute as often as you want!
Please do not worry about the level of writing ability you may or may
not enjoy.
THERE ARE NO AGE RESTRICTIONS
We will accept written contributions
from teens.
Click on any of the email links anywhere on the site.
This is one of those times,....like the kids say........
'JUST DO IT!'
If God brings you to it, He will bring you through it.
Sent by: Kevin J. Smant
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