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INTRODUCTION & FOREWORD |
| I want to make a few matters crystal clear right
from the start. I am not a medical or psychological professional. I
am not an author, other than with regard to the fact that I am, technically,
the author of this document. Any and all information found in
this document can be described as my opinion or the opinion of an anonymous
contributor. As such, any and all information found in this document
should be reviewed with and confirmed by an appropriate professional before
initiating or considering any action, treatment, procedure, equipment or
other activity of any kind.
This document is simply a compilation of experiences and opinions contributed by individuals who may in some way be, involved or, previously involved with Moebius Syndrome. These individuals may be, diagnosed with Moebius Syndrome, parents of children diagnosed with Moebius Syndrome, grand parents, sibling, friends and/or acquaintances. This document may be revised, at my discretion, and /or as further information becomes available through contributions and/or research. I am interested in contributions at any time, on any subject related to Moebius Syndrome and in any writing style. No detail should be considered worthless. If you have something on your mind or an experience.........scratch it down and send it in. This is an ongoing project and therefore will constantly be in need of your support. The sole purpose of the Parent's Guide & Owner's Manual is to document the journey of those individuals and families interacting with Moebius Syndrome. Hopefully, this documentation will be of some use to those individuals and families as yet unknown or recently inducted into the world of Moebius Syndrome as well as those presently interacting with Moebius Syndrome on a daily basis.
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CONTACT INFORMATION |
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