MOEBIUS1.ORG |
INTRODUCTION |
I want to make a few matters crystal clear right from the start. I am not a medical or psychological professional. I am not an author, other than with regard to the authorship of this web site. Any and all information found on the Moebius1.org web site can be described as the opinion of an anonymous or known contributor. As such, any and all information found on this site should be reviewed with, and confirmed by, an appropriate professional before initiating or considering any thought process, action, treatment, procedure, equipment or other activity of any kind. This web site is simply a compilation of experiences and opinions contributed by individuals who may in some way be, presently involved or, previously involved with Moebius Syndrome. These individuals may be, diagnosed with Moebius Syndrome, parents of children diagnosed with Moebius Syndrome, grand parents, sibling, friends and/or acquaintances. This web site may be revised, at my discretion, and /or as further information becomes available through contributions and/or research. I am interested in contributions at any time, on any subject related to Moebius Syndrome and in any writing style. No detail should be considered worthless. If you have something on your mind or an experience.........scratch it down and send it in. This is an ongoing project and therefore will constantly be in need of your support. The sole purpose of the Parent's Guide & Owner's Manual is to document the journey of those individuals and families interacting with Moebius Syndrome. Hopefully, this documentation will be of some use to those individuals and families as yet unknown or recently inducted into the world of Moebius Syndrome as well as those presently interacting with Moebius Syndrome on a daily basis.
Tom Voorheis, Director - Moebius1.org |
CONTACT INFORMATION |
MOEBIUS1.ORG |