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PARENT'S GUIDE & OWNER'S MANUAL
MODEL: MOEBIUS SYNDROME

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SO THAT'S WHAT IT IS - (LATER DIAGNOSIS)
For many, the Moebius Syndrome diagnosis does not come at birth.  Nearly all find relief in finally putting a name to the condition.

Chapter 10

My name is Dawne and like you I have moebius syndrome.  I am 38 years of age and was diagnosed with moebius only last Thursday (20.02.02)  up until this point I believed that my facial paralysis was due to medication my mum had been prescribed during pregnancy.  This theory was my mum's and was never agreed or disputed by the medical profession until now.  As a child I experienced total paralysis of my face had a long tongue.  My grandparents (who were my inspiration) told me to keep practising my smile and that anything was possible if I tried hard enough!  It did not happen over night but as the years have progressed I have developed some movement in my face (below my eyes only).  I can smile but not frown - but then woman spend thousands of pounds on botox to achieve the wrinkle free forehead I have (ha ha).  Like you, I am also a professional (Nursery Nurse) and have never let my 'difference' stop me from achieving my goals.  In fact I often think it is this difference that drives me.  I would love to hear from you and get to know more about you.  The last few days have been a rollercoaster of emotion for me.  I thought I was one of a kind!!

 Dawne

 

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