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I was born with Mobius Syndrome 52 years ago. At
the time doctors did not even know what it was.
My mom tells me at one time there was a room filled with doctors poking me in the face with needles to see if I had any feeling.
Some of my other symptoms include "club Feet". I
have had six operation on them to correct them.
I have peripheral vision. I can see mostly what is in front of me. The left hand is very small.
I went to a regular grammar school and high
school. The kids were rather cruel to me. Kids can be cruel in
general.
I think you have to be "perfect" in order for them not to pick on you. What is amazing is that they are not perfect themselves.
Finding a job was even harder. During my
lifetime I have had two great jobs.
In the early 70's I worked for a home study course. I would record student's lessons by hand as they came in. That company moved out of town. During the late 80's I worked for an investment banker as a proofreader. That company went out of business. Currently I am on social security disability and living with my eighty-five year old mother.
In the early 90's I taught literacy to adult
women. It was amazing and sad too that these adult women could not read
a first grade book.
I will never forget one women she told me she was so happy "because they is learnin me". Sometimes things happened in my life that just made life easier to handle.
Darlene
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