TIRED?

Hello Webmaster!
     You can add my email to your support list. My name is
Suzanne Silverman and I have a 14 month old with Moebius Syndrome.
     Her name is Isabel and we love her very much. She does not swallow and gags.  She needs constant suctioning and eats only via G-button since birth. She has been hospitalized 9X with aspiration pneumonia. She is getting stronger and stronger everyday though. We have alot of faith in her strength!
     I also have 2 sons with Tourette's Syndrome. Tourrettes Foundation has unbeilievable support. There is plenty of info on it and they have lots of movie stars supporting the fight.
     It is nice to finally see another website for Moebius info and support. I am thankful to you for setting this up and if I can do
anything, please let me know.

Sincerely,
Suzanne Silverman